Friday, April 27, 2012

Family with Hypertrichosis

A story of a Nepalese family touched my heart and made me realize that if there are people who are so blessed in almost every aspect of their lives, there are also those who seem to be cursed. Their story circles around their journey, with the hope that there would be a concern citizen who would help them cure their rare condition.

This family suffers from what is called as Hypertrichosis, also known as Ambras Syndrome. Hypertrichosis is an abnormal amount of hair growth on the body. Extensive cases of hypertrichosis have informally been called werewolf syndromeIt has two distinct types: generalized hypertrichosis, which occurs over the entire body, and localized hypertrichosis, which is restricted to a certain area. 

The family had been teased for their condition; so they traveled to Kathmandu, their country's capital, to look for assistance for the cure of this congenital condition.

With the consultation they attended, they found out that they could be cured by a laser therapy. This gave them hope that, at least, they could still live life normally -free from constant taunts from others.

"My children have talked about the new life ever since we received the word the hospital is going to treat us."
"My son has told his friends that he will be back with a new face and they can no longer tease him."

They are only among those who feel so intimidated and scorned because of their "peculiarity". They often become the subject of mockery. For sure, if they could only choose, they would not want to be like that. It's a great lesson for every one of us. We should realize that even if sometimes we feel that life is unfair, still we have to be thankful because we are more blessed for we are given such kind of life --a life that is far better than others'. Aside from that, we should also learn to understand and respect what we see in others as "different from the rest". We must put ourselves in their shoe instead of teasing or mocking them. At least we could help them feel that they are accepted and that they are not different.